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The Hospice Information System and its association with the congruence between the preferred and actual place of death

Huang‑Ren Lina, Jen‑Hung Wangb, Jyh‑Gang Hsieha, Ying‑Wei Wanga,c, Sheng‑Lun Kaoa*

aDepartment of Family Medicine, Buddhist Tzu Chi General Hospital, Hualien, Taiwan, bDepartment of Medical Research, Buddhist Tzu Chi General Hospital, Hualien, Taiwan, cHealth Promotion Administration, Ministry of Health and Welfare, Taipei, Taiwan

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Open Access funded by Buddhist Compassion Relief Tzu Chi Foundation

 

Abstract


Objective: A Hospice Information System (HIS) developed in eastern Taiwan in 2012 aimed to improve the quality of hospice care through an integrated system that provided telemetry‑based vital sign records, online 24/7 consultations, online video interviews, and online health educations. The purpose of this study was to explore the congruence between the preferred and actual place of death (POD) among patients who received HIS services. Materials and Methods: A retrospective study was performed from January 2012 to August 2016. Data from patients enrolled in the HIS who died during this period were included. Data on basic characteristics and the actual and preferred POD were obtained from the HIS database. The primary outcome was the congruence between the preferred
and actual POD. Secondary outcomes were comparisons between patients who did and did not achieve their preferred POD. Further comparisons between patients who did and did not achieve home death were also performed. Results: In total, we enrolled 481 patients who received HIS services and died. Of them, 444 (92.3%) died at their preferred POD. Patients who preferred an inpatient hospice as their POD had higher achievement rate than those who wanted a home death. High‑intensity HIS utilization was associated with a higher likelihood of home death than low‑intensity HIS utilization. Patients living in areas distant from the medical center had lower achievement of home death than those living in local areas. Conclusions: This study suggested that patients enrolled in the HIS had high congruence between the actual and preferred POD.


Keywords: Home care, Hospice care, Palliative care, Patient preference

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